FAQs

Q?

Who does Gabby’s Love Foundation support?

A.

Gabby's Love Foundation works to support all children living with an inherited bleeding disorder. This includes children with all forms of hemophilia, von Willebrands disease, Factor VII and more.

Q?

What area does Gabby’s Love Foundation cover?

A.

While we work on different advocacy plans nationwide, the primary community area for Gabby's Love Foundation is the 4-State area of Pennsylvania, Maryland, West Virginia and Virginia.

We hope to expand this community over time.

Q?

Why was Gabby’s Love Foundation started?

A.

Gabby's Love Foundation was created after Gabby (see Gabby's Story) was diagnosed with a rare bleeding disorder known as Factor VII Deficiency.

Gabby's doctors informed her that she was the first patient that they had ever diagnosed, leading to issues getting proper treatment. When she was diagnosed, her parents immediately went to search out information on the bleeding disorder and ran into several stumbling blocks.

First, there was extremely limited data on the disorder. On checking NORD (National Organization for Rare Disorders) for their definition of Factor VII, Gabby's parents were stunned when their listed synonym of Alexander's disease brought them to a extremely rare, usually progressive and fatal, neurological disorder. As parents of a newly diagnosed, rare case, this was a bad case of mistaken moniker.

Second, Gabby had to endure several very long and dramatic trips to her hemophilia treatment center (HTC) for treatment. During these trips, she met with several children being treated for different diseases and disorders within their lives. As part of these treatment visits, she learned that her HTC was providing new toys to children who were also being treated, and that is where Gabby's love endured. She was so excited to be able to donate toys to her local HTC, and wanted to spread her love from there.

Third, with Gabby and her parents seeking out new information, they inevitably came to join their local hemophilia chapter. Here, they learned of different patients from all over facing different variations of bleeding disorders. While the chapters did a great job on assisting anyone with a bleeding disorder, the primary focus appeared to be on adults, and were generally limited to the state of the chapter. This is when Gabby's parents realized the need for focusing on children living with bleeding disorders, and breaking down any borders that surrounded them.

From here, Gabby's Love Foundation was created and founded in February, 2017.

Q?

What are some of the programs that Gabby’s Love Foundation provides?

A.

Gabby's Love Foundation works on several different programs throughout the year. Our primary focus is to assist children with inherited bleeding disorders.

Our current programs in works are:

  • Member Backpacks for newly diagnosed children.
  • Financial and travel support to ensure proper bleeding disorder treatment for children.
  • Educational seminars to help children with group needs.
  • Hosting (and/or co-hosting/co-sponsoring) different events in the community for children with bleeding disorders.
  • Advocacy for children with bleeding disorders.

We are able to provide these programs, many at no cost to families and children, with generous support from our donors.

Q?

What are some of the ways I can donate to Gabby’s Love Foundation?

A.

Gabby's Love Foundation has partnered with several companies that assist in donor-ship programs. Here are direct ways you can financially support Gabby's Love Foundation.

We also have small businesses in our community who have change donation boxes or merchandise bands for sale. See our #ShowYourSupport page for details.

For more information and options, please see our Donate! page.

Q?

Why are most of the stories about Gabby, and not other children?

A.

Gabby's Love Foundation maintains the discretion of all of our clients in accordance to HIPAA (Health Insurance Portability and Accountability Act of 1996) compliance. This is a United States legislation that provides data privacy and security provisions for safeguarding medical information.

In the case of Gabby, her and her parents have offered to share her stories as a cornerstone of Gabby's Love Foundation, and to provide hope to other children living with inherited bleeding disorders. On occasion, we do share stories from other children that we have supported, but only with pre-authorized parental or guardian approval.

Want to share a story with us? Send us an e-mail at info@gabbyslove.org

Q?

Does Gabby’s Love Foundation sell any merchandise to show support?

A.

Absolutely! Gabby's Love Foundation has different merchandise (some of limited quantity) that is available throughout the year! Some of our merchandise is limited to events we run, while other merchandise may be available on a third-party store.

Check out our #ShowYourSupport page for more information!

Q?

What types of events does Gabby’s Love Foundation offer?

A.

At Gabby's Love Foundation, we work to support the children with inherited bleeding disorders within our community by offering different types of events throughout the year. Some of these events are community-based, while others are strictly limited to children with inherited bleeding disorders and their families.

Please see our Events page for information on all upcoming events!

Q?

Is Gabby’s Love Foundation affiliated with NHF or HFA?

A.

While NHF (National Hemophilia Foundation) and HFA (Hemophilia Federation of America) are both functioning bleeding disorder support communities, Gabby's Love Foundation does not have a direct affiliation with either; however, we do often work with both organizations in partnering events (or parts of events) as well as work to help new and current patients stay involved with the bleeding disorder communities by introducing them to these support communities.